How do I take care of my child if they have BWS?

How do I take care of my child if they have BWS?

While Beckwith-Wiedemann Syndrome can affect different children in different ways, there are a few medical conditions that may affect most children who have BWS:

• All children with BWS have more risk for developing childhood cancers and will need regular checkups and tests so providers can find and treat cancer before it spreads.
• Approximately 90% of children with BWS have macroglossia (large tongue), which could affect their ability during infancy to breast or bottle feed and to sleep.
• Between 45% to 65% of children with BWS have overgrowth (being big for their age) or lateralized overgrowth (where one part or side of their body is larger than the other side.). While overgrowth typically slows down in late childhood, children with lateralized growth may need surgery to correct the imbalance.