How do I take care of myself or my child?

How do I take care of myself or my child?

As the condition progresses, you may need extra support. People that can help you cope with the disease include specialists in:

• Gastrointestinal issues.
• Nutrition.
• Psychiatry.

As Alpers disease becomes worse, home health nurses can help manage care. In the final stages, a palliative care team can provide support.

Support groups for Alpers disease and other mitochondrial diseases can also help you share resources and get advice.