How can I care for my child with ALD?

How can I care for my child with ALD?

Early intervention may offer the best chance for successful treatment. If you notice signs in your child, including behavioral or cognitive changes, talk to your healthcare provider. Also talk to your provider if your child seems to lose abilities they once had.

Your child’s care team should include:

  • Pediatrician.
  • Pediatric and adult neurologist (specialist in the brain and nervous system).
  • Urologist (specialist in the urinary system).
  • Endocrinologist (specialist in the endocrine system).
  • Psychiatrist.
  • Physical therapist.
  • Genetic counselor.
  • Other specialists as needed.

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