What should you know about living with chronic thromboembolic pulmonary hypertension (CTEPH)?

What should you know about living with chronic thromboembolic pulmonary hypertension (CTEPH)?

  • You will have to be on blood-thinners for the rest of your life. Warfarin (Coumadin®) is preferred, but you might be able to switch to newer anticoagulants after a period of time.
  • Your healthcare provider may suggest a low-salt diet. In addition, you might have to be careful with some foods and drugs as a result of taking blood-thinners.
  • Your healthcare provider might suggest exercise, such as walking, as tolerated.
  • Your doctor might decide to insert an inferior vena cava filter (IVC filter) into your abdomen to stop clots from moving upward from the legs.

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