What is the outlook for people with systemic capillary leak syndrome?

What is the outlook for people with systemic capillary leak syndrome?

Systemic capillary leak syndrome can usually be managed with preventive treatments. Treatments generally work better when people are diagnosed earlier and have fewer complications. Serious complications due to capillary leak syndrome may include:

• Compartment syndrome, when pressure builds up in muscles and reduces blood flow.
• Fluid around your heart and in your lungs (cardiac tamponade, pericardial effusion and pleural effusion).
• Heart failure.
• Kidney failure.
• Nerve damage (neuropathy).
• Pulmonary edema, when there’s excess fluid in your lungs.
• Rhabdomyolysis, when a muscle injury leads to kidney failure.
• Stroke.