What can I expect if my child has BWS?

What can I expect if my child has BWS?

Beckwith-Wiedemann Spectrum is a complex syndrome that can affect your child in different ways and at different times as they grow from infancy until age 8.

For example, if your child has omphalocele, where their internal organs grow outside their stomach, healthcare providers may recommend you delay taking your newborn child home until they have surgery. On the other hand, children who have hemihyperplasia, which causes one part or side of their body to be larger than the other side, may outgrow the physical difference.

All children with BWS have more risk for developing childhood cancers and will need regular checkups and tests so providers can find and treat cancer before it spreads.

Regardless of your child’s specific needs, your healthcare provider will recommend medical treatment and other steps to help you manage your child’s BWS symptoms.