What can I expect if I have a baby with Apert syndrome?

What can I expect if I have a baby with Apert syndrome?

Apert syndrome is a lifelong condition with no cure. Surgery to release pressure to the brain, along with reconstructive surgery, will occur soon after your baby is born. Close follow-up with multiple specialists is necessary for your baby. After surgery and with ongoing treatment, babies born with Apert syndrome have a regular life expectancy and should stay up to date with their healthcare provider to address any concerns they might face as they grow older. You should schedule regular visits with providers to examine your child’s vision, teeth and hearing as they grow. Your child may need follow-up surgery as they develop to target any persistent symptoms of the condition.