What can I ask my child’s healthcare provider about Canavan disease?

What can I ask my child’s healthcare provider about Canavan disease?

Consider asking your child’s healthcare provider:

• What disabilities can I expect to see and when?
• What’s my child’s life expectancy?
• How can I make my child more comfortable and safer?
• What specialists does my child need to see?
• How often should we see them?
• Should our family get genetic testing?