What’s the prognosis if my child has Dravet syndrome?

What’s the prognosis if my child has Dravet syndrome?

Your child may have long-lasting and frequent seizures. The goal of treatment is to achieve the best seizure control possible. Medications help reduce the number and severity of seizures, but becoming completely seizure-free isn’t usually possible.

Your child will have other health problems and developmental setbacks that need to be caught early so they can be managed early. A crouched gait (unsteady walk/balance) is seen with increasing age (teen years and beyond). Mental decline slows and stabilizes as your child gets older. Seizures also tend to decrease in number and length as your child ages. Despite this, most children, teens and adults need ongoing care from parents or caregivers.