How is Edwards syndrome (trisomy 18) treated?

How is Edwards syndrome (trisomy 18) treated?

Often, the condition is so severe that babies who survive being born are treated with comfort care. But treatment for Edwards syndrome (trisomy 18) is unique for each child, based on the severity of their diagnosis. There’s no cure for Edwards syndrome (trisomy 18).

Treatment for Edwards syndrome (trisomy 18) might include:

• Cardiac treatment: Heart problems affect nearly all cases of Edwards syndrome (trisomy 18). Not all babies with cardiac problems due to Edwards syndrome (trisomy 18) are eligible for surgery, but some might be.
• Assisted feeding: Children diagnosed with Edwards syndrome (trisomy 18) can have problems eating normally due to delayed physical growth. A feeding tube might be necessary to address early feeding problems after your child is born.
• Orthopaedic treatment: Children diagnosed with Edwards syndrome (trisomy 18) may have spinal problems like scoliosis, which could impact how your child moves. Orthopaedic treatment could involve bracing or surgery.
• Psychosocial support: Support is available to you, your family and your child diagnosed with Edwards syndrome (trisomy 18), especially to help cope with the loss of your child or help you navigate your child’s complex diagnosis.