How is Crouzon syndrome treated?

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How is Crouzon syndrome treated?

A team of healthcare providers trained in craniofacial disorders will provide treatment for your baby. This team may include:

  • Your baby’s pediatrician.
  • A neurosurgeon.
  • A plastic surgeon.
  • A dental specialist.
  • A genetic counselor.
  • A social worker.
  • An ears, nose and throat (ENT) doctor (otolaryngologist).
  • An audiologist.
  • An eye doctor (ophthalmologist).

Crouzon syndrome surgery is the main form of treatment for the condition. A neurosurgeon will perform surgery to:

  • Create room within your baby’s skull for their developing brain to grow.
  • Relieve pressure in your baby’s skull.
  • Improve the appearance of your baby’s head.

However, not all children require surgery. If your baby has mild Crouzon syndrome, their healthcare provider may recommend helmet therapy. With helmet therapy, your baby wears a special medical helmet that gently reshapes their skull over time.

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