How do I take care of my child during Crigler-Najjar syndrome treatment?
How do I take care of my child during Crigler-Najjar syndrome treatment?
The most common treatment for symptoms of Crigler-Najjar syndrome is phototherapy. Children diagnosed with this condition will need to spend time under phototherapy lights to remove bilirubin from their body to prevent it from collecting in their blood and reducing jaundice. Most often, infants will need to sleep under phototherapy lights a few times a week to a few times a month. It can be difficult to put children to sleep under bright lights, even with light-blocking eye protection. Offer comfort to your child during their treatments by talking to them or touching them until they adjust to the lights and can sleep. Proper hydration is essential.