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Crouzon syndrome is a genetic condition that can affect anyone. It occurs because of a genetic change (mutation) that causes a gene not to work properly. Crouzon syndrome can be inherited or acquired through a new genetic mutation.

If your child inherits Crouzon syndrome, only one parent had to carry and pass on the mutated gene (autosomal dominant). A parent with Crouzon syndrome has a 50% chance of passing it on to their child.

Crouzon syndrome can also occur because of a spontaneous genetic mutation in the egg or sperm cell. In these cases, Crouzon syndrome isn’t inherited from the parents. New genetic changes in sperm cells happen more often if a father is older than 40 to 45 when their baby is born.

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